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2024-2025 Impact Report

Banner of the 2024-2025 Impact Report, titled 'Building and Advocating for North Carolina's I/DD Community.' The design includes images of people interacting in various settings, along with a person holding a document at a meeting.

Each year, the North Carolina Council on Developmental Disabilities (NCCDD) publishes an impact report summarizing the Council's activities during the federal fiscal year (FFY). The report includes highlights of initiatives funded by NCCDD, along with updates on other activities accomplished by NCCDD and its governor-appointed Council. We are pleased to present to you our Annual Impact Report for FFY October 1, 2024 through September 30, 2025.


  • A Year in Reflection

    A video conversation featuring Jon D'Angelo, NCCDD Chair; Marjorie Serralles-Russell, NCCDD Vice Chair; and Talley Wells, NCCDD Executive Director.

  • Growing Voices Through Policy Education

    NCCDD works to share information that supports people with I/DD, their families, and leaders to understand important issues. NCCDD supports policies that help people with I/DD be included in their communities and connect with the people who support them.

    Click on the + symbol to the right of the section heading to view the section’s content.

  • Engaging and Empowering Advocates

    Self-advocacy is people with disabilities speaking up for their rights, needs, and choices. This leads to more independence, a better quality of life, and a stronger voice in their communities. NCCDD provides several opportunities for people with I/DD to raise their voices and create change.

    Click on the + symbol to the right of the section heading to view the section’s content.

  • Creating Positive Change Through Our Initiatives

    Through its Five-Year State Plan, NCCDD supports initiatives that help people with I/DD live better lives. These projects focus on building advocacy skills, supporting community living, and helping people become more financially independent. The goal is to give people with I/DD the supports and services they need to live full, meaningful lives.

    Click on the + symbol to the right of the section heading to view the section’s content.

  • Planning For Future Initiatives

    During 2025, NCCDD began planning for its next Five-Year State Plan for 2017-2031. This strategic plan, required by the federal DD Act, outlines goals, activities, and initiatives the Council will fund to ensure self-determination, independence, productivity, integration, and inclusion for North Carolinians with I/DD and their families.  

    The most important part of this process is to gather public input. A comprehensive survey, offered in English and Spanish, was launched in April. Public Input Sessions were held from July through September. Sessions were held in-person across North Carolina, along with two virtual sessions. These opportunities allowed self-advocates, families, and stakeholders to share what matters most to them.  

    The Council will now review the community feedback from the surveys and public input sessions to determine what its next Five-Year State Plan will include.

    A diagram displaying a network map of services in the Asheville area. It includes labeled points for various community services, financial resources, housing assistance, and other support networks. Key icons represent assistance for individuals and families, with connecting lines illustrating the relationships between different resources and locations in Asheville. Icons indicate a variety of services available, including financial support and housing options.

  • NCCDD's Response During Hurricane Helene Aftermath

    After the devastating impact of Hurricane Helene on Western North Carolina, NCCDD held daily virtual meetings for the first two weeks after Hurricane Helene, focusing on the needs of the disability community impacted by the hurricane. 423 total attendees participated in the meetings, which included individuals with disabilities, family members, North Carolina Emergency Management, emergency responders, Federal Emergency Management Agency (FEMA), and NC Department of Health and Human Services (NC DHHS). NCCDD continued to participate and support daily meetings that were hosted by NC Emergency Management and NC DHHS. 

    The Council shared information alerts via email, social media, newsletter, and website. The Council’s advocacy, along with the advocacy of many others, helped ensure all individuals with intellectual or other developmental disabilities (I/DD) receiving services were contacted to respond to their needs. 

    Since then, NCCDD created a small project to collect stories from individuals with I/DD and families impacted by Hurricane Helene. These stories will be used to develop a report on ways to better prepare for future natural disasters.

  • Communications and Outreach

    NCCDD shares news and updates with people in North Carolina’s I/DD community through its website, emails, social media, and news stories. This includes information about NCCDD projects, important I/DD news from other groups, and special campaigns like My Story Matters or public input sessions.

    Website

    In August, NCCDD launched a new and improved website. The updated site makes it easier for visitors to find resources, events, and Council news. It also works better on phones and tablets and meets accessibility standards. All content was reviewed to be clear and easy to understand.

    Three icons representing the logos of different organizations (the first two are stylized with a blue and green theme), alongside a computer monitor displaying a webpage titled "Welcome to the Community." The webpage features a navigation menu and a prominent button labeled "Join the Community."


    Email Outreach

    A series of icons representing contact options, including an email envelope, a user profile, and an information icon, suggesting ways to reach out or get support.


    Social Media

    NCCDD is active on social media through its Facebook and Instagram pages, along with a YouTube channel. All Social media channels are active, with nearly 5,000 followers combined on all channels.

    Icons depicting social media connections, user engagement, and content sharing, highlighting the importance of community interaction and connections.


    Media Coverage

    A screenshot of a news website called "Sunderland" featuring a headline about the impact of artificial intelligence on disability services. The image includes icons representing database management, a clock, and a user profile, along with a photograph of a group discussion taking place in a conference setting.

  • Budget for FFY October 1, 2024 - September 30, 2025

     BUDGET  AMOUNT %
     Goal 1: Financial Asset Development (FAD)  $446,728.84 21%
     Goal 2: Community Living (CL)  $679,465.25 31%
     Goal 3: Advocacy Development (AD)  $441,728.61 20%
     Operations & Administration  $599,767.30 28%
     TOTAL BUDGET  $2,167,690.00 100%

    A pie chart illustrating the distribution of goals and administrative focus areas. Goal 1 (FAD) accounts for 21%, Goal 2 (CL) for 31%, Operations & Administration for 28%, and Goal 3 (AD) for 20%.


The 2024 - 2025 Impact Report is also available as a PDF download in English and Spanish.

Cover of the 2024-2025 Impact Report by the North Carolina Council on Developmental Disabilities. The title reads 'Building and Advocating for North Carolina's I/DD Community,' featuring a collage of images including a person speaking at a podium and individuals engaged in discussions.

Download the
English Version

            A graphic background with a deep blue color, featuring yellow and white abstract stripes. The text "Coming Soon" is prominently displayed in white, indicating upcoming content or events.

Download the 
Spanish Version

This project is supported by grant number 2401NCSCDD ($2,162,660.00), which is 100% federal funding, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by ACL/HHS, or the U.S. Government.


Read more …2024-2025 Impact Report

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Community Living Committee Agenda November 4, 2021

Community Living Committee Agenda November 4, 2021
10:00 a.m. – 1:00 p.m.
Virtual Meeting ID: https://www.zoomgov.com/j/1612016152?pwd=OC9RbzVXZ2puL1FuQ0VqSFJ0V2xMdz09 

 

10:00 a.m. – 10:20 a.m.

Introduction

  • Welcome
  • Approval of August minutes
  • Member Development Activity       

Ryan Rotundo, Chair

 

10:20 a.m. – 10:30 a.m.

Fiscal Report

Shar’ron Williams, Staff

 

Initiative Updates

10:30 a.m. – 10:50 a.m. 

  • Justice: Release, Reentry, and Reintegration

Vicki Smith, Alliance of Disability Advocates

10:50 a.m. – 11:10 a.m. 

  • COVID-19 Registry of Unmet Needs Relief

Debby Torres, First in Families of NC
Le’Carla McNair, FIFNC
Mark Cline, Quillo
John Dickerson, Quillo

11:10 a.m. – 11:30 a.m. 

  • Registry of Unmet Needs Research Project / A Coordinated Campaign to Meet the Unmet Needs

Christina Dupuch, Cansler Collaborative Resources , Beth Field, MHTA

 

11:30 a.m. – 11:55 a.m.

Creative Brainstorming

Ryan Rotundo, Chair , Philip Woodward, Staff

 

11:55 p.m. – 12:25 p.m.

Future Investment Discussion

  • Economic Impact Analysis  John Nash, The Arc of NC

Ryan Rotundo, Chair , Talley Wells, Staff , Philip Woodward, Staff

  • Housing / Roommate Matching for People with I/DD 

 

12:25 p.m. – 12:30 p.m.            

Wrap Up and Reminders

  • Reminder: Next Council meeting –
    • February 10-11, 2022       

Ryan Rotundo, Chair

 

COMMUNITY LIVING COMMITTEE   
Ryan Rotundo, Chair Sibling-Buncombe
(Vacant); Alternate: Mya Lewis Agency: DHHS-MH/DD/SAS-Wake
Katherine Boeck Individual with DD-Edgecombe
Rhonda Cox; Alternate: Judith Kirkman Non-Profit Agency-Buncombe
Allison Dodson Sibling-Watauga
Joshua Gettinger, M.D. Parent-Buncombe
Brendon Hildreth Individual with DD-Craven
Aldea LaParr Individual with DD-Wayne
Virginia Knowlton Marcus Agency: Disability Rights NC-Wake
Senator Sydney Batch Senate Representative-Wake
Dale Stephenson Sibling-Wake
Peggy Terhune, Ph.D. Local Non-Governmental Agency-Randolph
Sandra Terrell; Alternate: Deb Goda Agency: DHHS-NC Medicaid-Wake
   
Staff: Philip Woodward  
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Community Living Committee Agenda May 12, 2022

Date: May 12, 2022
Time: 10:00 a.m. – 12:00 p.m.
Hemlock Room & ZoomGov-Virtual Meeting ID: https://www.zoomgov.com/j/1617032614?pwd=eHRTd0wrdnZySWs4YW1rN0ltU0xlUT09

 10:00 a.m. – 10:20 a.m. Introduction  
  • Welcome
• Approval of February minutes
• Member Development Activity                                                   

Dr. Charlrean Mapson,
Chair

10:20 a.m. – 10:30 a.m. Fiscal Report Shar’ron Williams, Staff
  Initiative Updates  
10:30 a.m. – 10:45 a.m. • Making Alternatives to Guardianship a Reality in North Carolina Linda Kendall Fields, UNC Cares
10:45 a.m. – 11:00 a.m. • Supported Living: A How-to Guidebook Greta Byrd, Liberty Corner Enterprises
11:00 a.m. – 11:15 a.m. • Justice: Release, Reentry and Reintegration Vicki Smith, Alliance of Disability Advocates
Sharif Brown, Alliance of Disability Advocates
     
 11:15 pa.m. – 11:35 a.m. Future Investment Discussion  
  • Roommate-Matching Service for People with I/DD Dr. Charlrean Mapson, Chair
Philip Woodward, Staff
11:35 a.m. – 11:55 a.m. Follow-up on Presentations / Western
North Carolina I/DD Needs Discussion
Dr. Charlrean Mapson, Chair
Philip Woodward, Staff
11:55 a.m. – 12:00 p.m.   Wrap Up and Reminders  
  • Reminder: Next Council meeting – Dr. Charlrean Mapson,
Chair
  o August 11-12, 2022 Cary, NC  

 

COMMUNITY LIVING COMMITTEE   
   
Charlrean B. Mapson, D.Min., Chair Parent-New Hanover
Senator Sydney Batch Senate Representative-Wake
Rhonda Cox; Alternate: Judith Kirkman Non-Profit Agency-Buncombe
Joshua Gettinger, M.D. Parent-Buncombe
Brendon Hildreth  Individual with DD-Craven
Gary Junker, Ph.D.; Alternate: Jamila Little Dept. of Public Safety-Orange
Dave Richard, Deputy Secretary, NC Medicaid Agency: DHHS-Wake
Ryan Rotundo Sibling-Buncombe
Dale Stephenson Parent-Wake
Peggy Terhune, Ph.D. Local Non-Governmental Agency-Randolph
Vacant (DMH/DD/SAS); Alternate: Vacant Agency: DHHS-MH/DD/SAS-Wake
Vacant (NaKima) Parent-Vacant
Vacant (Ronnie) Individual with DD-Vacant
   
   
Staff: Philip Woodward  
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Executive Committee Minutes, January 2022

Date:  January 18, 2022
Time: 10:30 AM – 11:57 AM
Members Present:
Bryan Dooley (Chair), Aldea Clairemont LaParr, Ryan Rotundo, Marjorie Serralles-Russell, Donna Spears
Members Absent:
Cheryl Powell
Staff Present: Pam Hunter Dempsey, David Ingram, La’Quadia Smith, Talley Wells, Tamira White, Shar’ron Williams, Philip Woodward, Letha Young
Guests/Council members Present: Dave Owens


I.      Call to Order

Bryan Dooley called the meeting to order of the Executive Committee and welcomed the members calling in.

II.      Approval of Minutes
The draft minutes for the November 15, 2021 & the December 20, 2021 Executive Committee meetings were reviewed and considered for approval.

MOTION: Marjorie Serralles-Russell made a motion to approve the draft minutes for the November 15, 2021 & the December 20, 2021 Executive Committee meetings. Ryan Rotundo seconded the motion. The motion was approved by unanimous vote.

 

III.     ED Update

  1. Council Vice Chair and Community Living Chair
    MOTION: Ryan Rotundo made a motion to recommend Dr. Chuck Mapson as the next Community Living Chair. Marjorie Serralles-Russell seconded the motion. The motion was approved by unanimous vote.

  2. Council Membership Recommendations to Governor’s Office of Boards and Commissions
    MOTION: Ryan Rotundo made a motion to recommend Bethany Dawn Smith to the Governor’s Office of Boards and Commissions for Council Membership. Aldea Clairemont LaParr seconded the motion. The motion was approved by unanimous vote.

  3. Hybrid or Virtual Council Meeting
    MOTION: Ryan Rotundo made the motion to transition the February Council Hybrid meeting to a Virtual meeting. Donna Spears seconded the motion. The motion was approved by unanimous vote.

  4. Council Committee Assignments
    MOTION: Aldea Clairemont LaParr made the motion to approve the Council Committee Assignments as recommended by the Executive Director. Marjorie Serralles-Russell seconded the motion. The motion was approved by unanimous vote.

  5. Future Initiatives and Budgets – Executive Director discussed future Initiatives and Budgets

  6. Staff Development funds – Executive Director discussed use of Staff Development funds to provide development on fiscal policies and planning

  7. Latin-X Update – Executive Director discussed Latin-X funding opportunities

IV.     Financial Report and Expenses/Match Update Shar’ron reviewed the financial reports for the NCCDD

V.     Council Meeting/Member Survey Review

David Ingram led the review of the draft agenda for the February 2022 Council Meeting.

VI.     Conference Funding Request

  • None at this time

VII.    Ad Hoc Committees/Updates

  • None at this time

VIII.   Adjourn

  • Bryan asked for a motion to adjourn,
    MOTION: Aldea Clairemont LaParr made a motion to adjourn the EC meeting. Donna Spears seconded the motion. The motion was approved. The meeting adjourned at 11:57AM.

 

 

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Executive Committee Agenda and Notes January 18, 2022

Date: January 18, 2022
Time: 10:30 AM – 12:30 PM

I. Call to Order

II. Approval of Minutes

The draft minutes for the November 15, 2021 Executive Committee meeting and December 20, 2021 Executive Committee meeting will be discussed and considered for approval – please see attached DRAFT minutes for both meetings

III. ED Update

  • Council Membership Recommendations to Governor’s Office of Boards and Commissions
  • Council Vice Chair and Community Living Chair
  • Council Member Position Opening
  • Hybrid or Virtual Council Meeting
  • Council Committee Assignments
  • Future Initiatives and Budgets
  • Staff Development funds: We will be using funds to get staff development on Budget from JoAnn Toomey
  • Latin-X Update

IV. Financial Report and Expenses/Match Update Shar’ron Williams will review with you the financial reports for the NCCDD – please see attached fiscal reports

V. Council Meeting/Member Survey Review
2022 February Council Meeting – please see attached draft agenda

VI. Conference Funding Request
None at this time

VII.  Ad Hoc Committees/Updates

  • Five-Year Submission
  • Diversity Equity and Inclusion
  • Public Policy Education Committee

VIII.   Personal Services Contract Review/Approval
None at this time

IX. Other

X. Adjourn

 

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