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People First Glossary

Below is a list of commonly accepted terms to be used in conjunction with People First language. This reference is drawn from a variety of credible sources such as subject-matter experts, state and federal law or other current publications.

Personal Assistance

One or more persons assisting another person with tasks the individual would typically do if he or she did not have a disability. It includes assistance with bathing, dressing, getting in and out of bed or one’s wheelchair, toileting, eating, cooking, cleaning house, on-the-job personal support, handling money and planning one’s day.

Personal Assistance Services

The term "personal assistance services" means a range of services, provided by 1 or more individuals, designed to assist an individual with a disability to perform daily activities, including activities on or off a job that such individual would typically perform if such individual did not have a disability. Such services shall be designed to increase such individual’s control in life and ability to perform everyday activities, including activities on or off a job.  (114 STAT. 1682 PUBLIC LAW 106–402—OCT. 30, 2000)

Physical Therapy (PT)

The treatment or management of physical disability, malfunction or pain by a number of non-invasive methods such as exercise, massage and hydrotherapy. For persons with developmental disabilities, PT may assist to enhance body function and prevent secondary disability.

Positive Behavioral Support

An approach for understanding why challenging behavior occurs, including what function or purpose the behavior has for the individual. Unlike earlier behavior management techniques that emphasize the use of consequences to affect behavior, positive behavior support considers such things as pain or medical conditions, environmental conditions, actions of others, lack of choice and autonomy, and lack of skills as potential sources of challenging behavior.

Prevention Activities

The term "prevention activities" means activities that address the causes of developmental disabilities and the exacerbation of functional limitation, such as activities that—(A) eliminate or reduce the factors that cause or predispose individuals to developmental disabilities or that increase the prevalence of developmental disabilities; (B) increase the early identification of problems to eliminate circumstances that create or increase functional limitations; and (C) mitigate against the effects of developmental disabilities throughout the lifespan of an individual. (114 STAT. 1682 PUBLIC LAW 106–402—OCT. 30, 2000)

Productivity

As defined by federal law, (a) engagement in income producing work by a person with a developmental disability which is measured through improvements in income level, employment status, or job advancement, or (b) engagement by a person with a developmental disability in work which contributes to a household or community.

Rehabilitation

A restorative process through which an individual develops and maintains self-sufficient functioning consistent with his/her capability.

Relay NC

Relay North Carolina is a dual-party relay system that provides 24-hour access to public telecommunications services for people who are deaf, hard of hearing, deaf-blind and/or speech impaired. Trained specialists receive calls and then relay messages through teletypewriters or orally, according to the needs of the person sending or receiving the call. For more information, contact Relay North Carolina’s customer service office at 800-735-0341 (voice) or 800-735-0533 (TTY).

Respite Care

Care for an individual with a developmental disability, in or out of the home, to provide a break from care giving for the family/primary caregiver.

Restraint

A restraint is—(A) Any manual method, physical or mechanical device, material, or equipment that immobilizes or reduces the ability of [an individual]; (C) A restraint does not include devices, such as orthopedically prescribed devices, surgical dressings or bandages, protective helmets, or other methods that involve the physical holding of [an individual] for the purpose of conducting routine physical examinations or tests, or to protect the [individual] from falling out of bed, or to permit the [individual] to participate in activities without the risk of physical harm (this does not include a physical escort), to move his or her arms, legs, body, or head freely; or (B) A drug or medication when it is used as a restriction to manage the [individual’s] behavior or restrict the [individual’s] freedom of movement and is not a standard treatment or dosage for the [individual’s] condition.

Seclusion

The involuntary confinement of [an individual] alone in a room or area from which the [individual] is physically prevented from leaving.

Secondary Conditions

Those conditions that are a direct or indirect consequence of a primary disability.

Self-Advocacy

An individual speaking or acting for him-/herself. Includes the individual determining what is best for him/her and taking charge in getting it as well as standing up for his/her rights as a person.

Self-Advocate

An individual with a disability who speaks or acts for him/herself. This includes making choices and decisions about one’s life.

Self-Determination

Self-determination means giving the person with a developmental disability control over how public funds allocated for his/her services and supports are spent. Because self-determination is based on the principles of freedom, authority, support and responsibility, it also means things like setting and pursuing goals, living in a place of one’s choosing, holding a job and taking responsibility for making a contribution back to the community.

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North Carolina Council on Developmental Disabilities

Office Hours: 9AM-4PM Monday-Friday
3109 POPLARWOOD COURT, SUITE 105,
RALEIGH, NC 27604
 
1-800-357-6916 (Toll Free)
984-920-8200 (Office/TTY)
984-920-8201 (Fax)
 
This project was supported, in part by grant number 2001NCSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.

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