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NC SEG Defines Expectations and Outcomes

During the first year of the NC SEG initiative, the grantee, National Association of State Directors of Developmental Disabilities (NASDDDS), convened a statewide group of stakeholders that consisted entirely of consumers and family members. When the proposed changes in Medicaid were discussed, the group indentified the following five outcomes a new Medicaid system should provide:

• No waiting lists
• Inclusive living
• Integrated employment
• Asset development
• System accountability

To make these outcomes a reality, the NC SEG members were charged with building support for the outcomes among the local groups they represented. In its second year, members sought the endorsement of the Consumer and Family Advisory Committee, provider agencies and other nonprofits. To date, the following organizations have endorsed the outcomes listed above:

• North Carolina Substance Use Disorder Federation
• The Power Of The Dream
• North Carolina Consumer Advocacy, Networking and Support Organization
• First in Families of North Carolina
• NC Statewide Independent Living Council
• State Consumer and Family Advisory Committee
• North Carolina Council on Developmental Disabilities
• Disability Rights North Carolina
• Developmental Disabilities Consortium

With an energized group of stakeholders and partners throughout the disability community, this initiative has been quite successful. First, it has allowed those most affected by changes in the Medicaid system to have a voice in the design of the new system. Secondly, this group is highly valued by policymakers at North Carolina’s Division of Mental Health, Developmental Disabilities and Substance Abuse Services (MH/DD/SA) because it is cross-disability and has a diverse representation of individuals from the State. Third, NC SEG has offered family members and self-advocates the opportunity to become well informed about Medicaid changes. And lastly, the NC SEG members have learned advocacy skills that will serve them when they meet with legislative members and communicate the importance of those outcomes in their decision-making.

NC SEG is hosting Consumer and Family Community Chats to discuss the new home and community-based settings (HCBS) rules – coinciding with the Department of Health and Human Services Listening Tour. The chats will be in Greenville, Winston-Salem, Wilmington and Asheville. This is a great chance, as a stakeholder, to get involved and have a meaningful voice in public policy.

For more information on the NC Stakeholder Engagement Group, visit www.ncseg.com


Governor Cooper Signs Executive Order to Prohibit Utility Disconnections

On March 31st, Governer Cooper signed Executive Order #124: an additional step to help families by prohibiting utilities from disconnecting people who are unable to pay during this pandemic. The order applies to electric, gas, water and wastewater services for the next 60 days. The order directs utility companies to give residential customers at least six months to pay outstanding bills and prohibits them from collecting fees, penalties or interest for late payment. Read more here.

If you have an Intellectual/ Cognitive Disability and Need to Go to the Hospital:
Your caregiver may come with you in the ambulance or in the hospital.

Wondering if/how the stimulus checks will affect Medicaid eligibility?

Click here for an Explanation

Notwithstanding any other provision of law, any refund (or advance payment with respect to a refundable credit) made to any individual under this title shall not be taken into account as income, and shall not be taken into account as resources for a period of 12 months from receipt, for purposes of determining the eligibility of such individual (or any other individual) for benefits or assistance (or the amount or extent of benefits or assistance) under any Federal program or under any State or local program financed in whole or in part with Federal funds.

Statewide Stay at Home FAQs

Click here to stay up-to-date on COVID-19 in NCor text COVIDNC to 898211.  

Call 2-1-1 (or 888-892-1162) for general questions or for help finding human services resources in your community.


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North Carolina Council on Developmental Disabilities
820 South Boylan Avenue
Raleigh, NC  27603
919-527-6500 (voice/tdd)
800-357-6916 (voice/tdd)
800-357-6916 (TTY)
919-850-2915 fax