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What is the North Carolina Council on Developmental Disabilities (NCCDD)?

  • The Council is an organization whose goal is to helping to improve the lives of all North Carolinians with intellectual and other developmental disabilities (I/DD).
  • The Council wants to create a system that focuses on self-determination and increased self-sufficiency.
  • Federal law creates a Council on DD in every state and territory in the US.
  • The NCCDD has 40 members. The Governor appoints each member.
    • At least 60 percent of the members must be people with I/DD or family members.
    • Others members are legislators, top state agency officials and representatives of Local Management Entities/ Managed Care Organizations and service providers
  • Federal law directs Councils to promote advocacy, capacity building and systems change activities.
  • Council-funded activities change people's attitudes and the way that North Carolina uses it resources on behalf of people with I/DD. We call it "systems change."

What does the NCCDD do?

  • Provides grants to carefully selected organizations for initiatives that advance the Council's goals.
  • Brings people to North Carolina that have an expertise from which the state can benefit.
  • Provides funds to help people with I/DD and their families increase their knowledge and understanding and become stronger partners in policymaking.
  • Helps build capacity to deliver services and supports in communities across NC.
  • Advocates on behalf of all North Carolinians with I/DD.

Can I have some examples?

  • Partners in Policymaking™ - Teaches leadership skills to people with I/DD and their families. This includes developing positive partnerships with elected officials and other policymakers.
  • Advancing Strong Leaders in Developmental Disabilities - Supports emerging, professional leaders and provides them with the information needed to become transformational leaders in the I/DD field.
  • The State Employment Leadership Network – Helps NC put policies and practices into place that make getting jobs for people with I/DD the state's top priority ("Employment First").
  • Policy Analysis and Research Reports – The NCCDD identifies barriers to change in laws, policies, regulations and programs. It educates others and offers solutions that are backed up by research; cost-effective; and advance the values and outcomes that people with I/DD and families want. The Council calls on leaders and citizens to take action to make needed changes.

That's awesome! How can I get involved?

  • Visit our website to learn more: www.nccdd.org
  • Join our email list and come to the next NCCDD meeting or NCCDD-sponsored event in your area.
  • Give feedback every year on the NCCDD State Plan; it directs how we spend our funds. If you sign up for the email list, you'll receive alerts on when and how to do this.
  • Share NCCDD's Position Statements with others.
  • Apply to become a Partner in Policymaking or a Council member.

Download the PDF.


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North Carolina Council on Developmental Disabilities

Office Hours: 9AM-4PM Monday-Friday
1-800-357-6916 (Toll Free)
984-920-8200 (Office/TTY)
984-920-8201 (Fax)
This project was supported, in part by grant number 2001NCSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.

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