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Disability Systems Change Committee Minutes, Nov 2014

Disabilities Systems Change Committee
Thursday, November 20, 2014
9:45 a.m. to 11:45 a.m.
Hilton Garden Inn, Cary, NC

Members Present: Samuel Miller, Kelly Woodall Beauchamp, Crystal Bowe, Eric Chavis, Kerri Bennett Eaker, Sandy Ellsworth (for Courtney Cantrell), Wing Ng, Greg Olley (for Joe Piven), Vicki Smith, Peggy Terhune

Members Absent: Christina Carter, Robin Cummings, Verla Insko, Dave Richard
Staff in Attendance:  Steve Strom, JoAnn Toomey, Ron Reeve, Chris Egan, Jennifer Bosk, Yadira Vasquez

Guests:  Beth Stalvey, Kelly Friedlander, Cas Shearin, Karen Luken, Brian Beauchamp, Monica Hamlin, Jim Jarrard, Dakota Kirkland and LeRoy Jarvis.   


Welcome: Samuel Miller, chairman of the Disability Systems Change Committee, called the meeting to order, welcomed all members, and provided an opportunity for guests to introduce themselves.

Dr. Miller called for a motion to approve the August 2014 Disability Systems Change Committee minutes.  Crystal Bowe made a motion to approve the minutes.  Wing Ng seconded the motion.  Motion carried.

Fiscal Update:

  • Council Staff Yadira Vasquez presented the review of the Council administrative and program budgets and explained the details.  Ms. Vasquez’s fiscal update presented the budget summary spreadsheet of the three fiscal years from which all initiatives are funded and a one page initiative update that provided budget information in an easy to read and understand format on the initiatives, “Adult Care Home Transition“, “Medical and Health Home with I/DD”, and “Medicaid Reform Stakeholder Engagement”.


During the fiscal presentation, a discussion began on the new communications initiative and the opportunity to develop a strategic plan.  Vicki Smith made the motion to authorize the Executive Committee to explore resources and expertise to train both Council members and staff on strategic planning.  Crystal Bowe seconded the motion.  Motion carried.  

Dr. Miller and members thanked Ms. Vasquez for her presentation on the fiscal details of each project.  

Recommendation for Funding from Selection Committee:

  • Dr. Miller asked anyone who had a conflict of interest in discussing the recommendations from the selection committee and any guests to wait outside the committee room.  Jim Jarrard, Monica Hamlin, and Vicki Smith exited the room during the discussion.  Crystal Bowe presented the update on the selection committee meeting.  Following the presentation, Dr. Miller called for a motion to accept the recommendation from the selection committee.  Kerri Eaker made a motion that the NC Division of Aging and Adult Services be approved as the applicant selected for the NCCDD Guardianship initiative.  Funding is approved for up to $75,000 with a required minimum of 25% non-federal matching funds, for year one of up to 3 years from January 1, 2015 to December 31, 2014.  Kelly Woodall Beauchamp seconded the motion.  Motion carried.

Initiative Updates:

  • Kelly Friedlander, contractor for NASDDDS, provided an update on the current initiative, “Medicaid Reform Stakeholder Engagement”.  The SEG has met two additional times since the August Council meeting and is preparing the members for the new year when the General Assembly reconvenes in 2015.  Dr. Miller requested that all Council members be added to the e-mail distribution list for all SEG correspondence.  Crystal Bowe made a motion to forward the SEG report to the full Council for formal approval and endorsement.  Vicki Smith seconded the motion.  Motion carried.  Dr. Miller thanked Ms. Friedlander for her presentation.

  • Cas Shearin, Disability Rights NC, provided an update on the “Adult Care Home Transition” initiative including stories of two individuals who have been identified as candidates to move into the community along with the challenges and barriers each face to transition into the community. Following a question and answer session, Dr. Miller thanked Ms. Shearin for her presentation. 
  • Karen Luken, contractor for Easter Seals UCP, provided an extensive update on the “Medical/Health Home” initiative.  Ms. Luken has been active in the past three months conducting community outreach and partner meetings.  The information gathered is important to inform the Department on the importance of integrated medical and behavioral health and will be gathering stories from families and individuals to write up the consumer profiles that highlight challenges and barriers to accessing healthcare.  Dr. Bowe and the members thanked Ms. Luken for her presentation.  

Agency of Choice Model and Discussion:

Following up on a discussion from the May Disability Systems Change Committee, Kerri Eaker brought her son, Dakota Kirkland and his direct support professional, LeRoy Jarvis, to talk to the Committee about the “Agency of Choice” model for providing supports and services.  Mr. Kirkland talked to the committee members about how this model has helped him have greater choices to participate in his community.  Mr. Jarvis presented the benefits of less paperwork and greater support of the individual.  Dr. Miller thanked Mr. Kirkland for his presentation.  Council Staff, Steve Strom, invited Mr. Kirkland back for the February Council meeting due to time running out for a full presentation. 

Wrap Up and Reminders:

Dr. Miller thanked the members of the Disability Systems Change Committee for their work during the meeting and adjourned the meeting.


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This project was supported, in part by grant number 2001NCSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.

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