North Carolina Council on Developmental Disabilities - NCCDD

NCCDD recognizes the positive potential and risk of a managed approach in our State. This approach can not only control costs, but increase access to services; allow for more flexibility in the services offered; and help "rebalance" the service system away from an institutional bias towards a greater use of home and community based supports. These goals can only be achieved if the system is designed and implemented to match existing resources with the unique needs of individuals with I/DD and their families.

The diverse needs of people with I/DD are often highly specialized. These needs are for daily, consistent habilitation services across the lifespan. As a result, the way people use services and the cost of those services differs significantly from people with addictive disease and mental health needs, whose services are more episodic. Attention to these unique elements in the system design and evaluation is needed in the statewide transition to managed long-term services and supports.

• NCCDD Statement on Expansion of Medicaid Eligibility
• NCCDD Statement of Principles on Providing Long-term Services and Supports to Individuals with Developmental Disabilities
• Public Notice and Request for Comment: CMS Home and Community Based Standards
• Centers for Medicare and Medicaid Services (CMS) Fact Sheets:
  • Home and Community Based Services (HCBS) Final Rule
  • Home and Community Based Services (HCBS) Final Rule Medicaid
  • Home and Community Based Services (HCBS) Employment
• NCCDD Survey and Member Input on HCBS State Plan
• NC Stakeholder Engagement Group (SEG) Input on HCBS State Plan
• Medicaid Managed Care: Major changes are taking place in the financing and delivery of long-term services and supports for individuals with disabilities. The way people with I/DD use services and the costs of those services differ significantly from people with addictive disease and/or mental health needs. The following reports outline principles that must be incorporated into serving individuals with disabilities and their families using a publicly managed approach.
  • Medicaid Managed Care for People with Disabilities
    National Council on Disability released a detailed report on March 18, 2013 for policy and implementation considerations for state and federal policymakers.
  • Managed Long-term Services and Supports
    Presidents Committee for Individuals with Developmental Disabilities released this 2012 Report on MLTSS.
• NCCDD Reform Input Letter
• NCCDD Statement of Principles: Why Due Process Matters to Individuals with Developmental Disabilities
• NCCDD Statement of Principles: Making Care Coordination Work for Individuals with Developmental Disabilities
• Disability Rights NC Medicaid Buy-in Fact Sheet
• NC Stakeholder Engagement Group (NCSEG) Outcomes and Expectations for Managed Long Term Services and Supports
• Service Gap Analysis: A Strategic Analysis for Change
: Data comparisons between North Carolina and other states on providing planning tools and action steps to improve the developmental disability system. Human Services Research Institute (HSRI)
  • A Strategic Analysis for Change: Action Steps 2011
    Based on the Service Gap Analysis, this paper outlines the action steps needed to improve the developmental disability system. Human Services Research Institute, 2011.
  • A Strategic Analysis for Change: Action Steps 2012
    Based on the Service Gap Analysis, this paper outlines the action steps needed to improve the developmental disability system. Human Services Research Institute, 2012.