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COVID-19 Resources Upcoming Public Meetings

COVID-19 Resources for Self-Advocates

NCCDD COVID 19 Banner2 copy

The North Carolina Council on Developmental Disabilities (NCCDD) wants to be a resource to share valuable information about the novel coronavirus, also known as COVID-19, to help people with intellectual and other developmental disabilities (I/DD) and their families stay safe and healthy.

For the latest news, information, webinars and resources from North Carolina, check the sidebar on the right:

IMMEDIATE ATTENTION! Peer to Peer Connections Online Meetings (flyer)

Meetings Every Monday and Thursday hosted by SARTAC: 1:00 pm east coast time. The meeting is for one hour. The focus is peer to peer connections. Self-advocates sharing information and supporting each other while staying home during the Coronavirus.

            Join Zoom Meeting https://zoom.us/j/324815633

            Dial 1 929 436 2866 Meeting ID: 324 815 633

Check HERE often for updates: Self-Advocates Resource and Technical Assistance Center website

Understanding Your Healthcare Rights NCCDD One-Pager

Preparing for Hospitalization During COVID-19 Pandemic: A Checklist for People with Disabilities Edition 2.0, 2020 NEW: You should do everything you can to stay out of a hospital, but if you have no choice, these tips help you prepare for what you may face.  It will NOT be business as usual.

ADA Compliance with Visitations in Healthcare Facilities:  Coronavirus Pandemic Guidance for Advocates Edition 1, 2020 NEW: Offers tips for advocating for visitations and working with healthcare facilities and state governments during current pandemic crisis about how to ensure healthcare facilities comply with Americans with Disabilities Act.

NCDHHS Provides One-Time Payment to Families with Children in Work First Cash Assistance Program

  • Today, the North Carolina Department of Health and Human Services (NCDHHS) began distributing a one-time supplemental payment to families enrolled in the Work First Cash Assistance program with one or more children. These payments are intended to help vulnerable families during the economic disruption caused by the COVID-19 pandemic. 
  • Read More

NCDHHS – Federal Stimulus Payments Issued Include Individuals with Disabilities

Federal stimulus payments are being issued and this includes payment to individuals with disabilities. Providers/licensees that also serve as Representative Payees for Social Security Administration (SSA) beneficiaries with disabilities should ensure payees understand that federal stimulus checks, known also as “Economic Impact Payments (EIP),” belong solely for the use of and by the beneficiary –not the payee.  We have posted guidance under the Individuals guidance page on our COVID page.

How to Prepare for a Video Appointment with Your Mental Health Clinician

COVID-19 Self Advocate - Link to Resources from California State Council on Developmental Disabilities

NCCDD Future Planning Webinar: Recording Now Available Here

$2 million Emergency Grant will Support Behavioral Health Response to COVID-19

A $2 million grant from the Substance Abuse and Mental Health Services Administration (SAMHSA) will support NCDHHS’ efforts to address the growing needs of people with mental health issues and substance use disorder as it relates to the COVID-19 crisis, along with the mental health needs of the general public and health care workers who are on the front lines of this pandemic. Keep reading.

Telehealth Helping North Carolinians Access Care

Using telehealth, North Carolinians can receive services while avoiding the risk of exposure to COVID-19. Doctors and other clinicians across the state are using telehealth to deliver primary care and prenatal care; help patients manage asthma, diabetes, high blood pressure and other chronic conditions; and provide behavioral health counseling, physical therapy and more. All insurance companies in the state, including Medicaid and Medicare, are covering healthcare visits through telehealth. DHHS and NC Medicaid have developed a video and a flyer to help alleviate concerns and encourage people to talk with their doctors about using telehealth to get the care they need to stay healthy.

What you need to know about COVID-19 – Plain Language (Video from Autistic Self Advocacy Network)

Example of Telehealth In Action: (8 Minute Video on a Telehealth Appt for a Woman with DD)

If you have a Communication Disability (Deaf or Hard of Hearing) - Use this document from NC DHHS

NCCDD Position Statement Rationing Letter to Gov Cooper 4/23/20 (pdf) (doc)

NC Medicaid Receives Federal Approval of Flexibilities for HCBS (see details)

Providing Access through Sign Language & Text for Low Vision & Tactile Communicators During the Coronavirus Pandemic from the New York Deaf-Blind Collaborative

COVID-19 Resources for Deaf, Hard of Hearing and DeafBlind People

The N.C. Department of Information Technology’s Broadband Infrastructure Office has developed an interactive map to help North Carolina residents find free and low-cost internet and mobile service offerings in their area. The online map is updated daily with new offerings, which include free public Wi-Fi access points for remote learning and working. This is part of the state’s efforts to help students and schools bridge the digital divide during the state’s response to COVID-19.

Things to Do During COVID-19

Disability Rights North Carolina – Accessing Special Education during COVID-19 Fact Sheet

Center for Dignity in Healthcare for People with Disabilities – Safeguard Against Disability Discrimination During COVID-19

NC-Interim Guidance for BHIDD In Home Service Providers from NC DHHS:  

Share Your Stories! 
Here are a few opportunities for self advocates to participate and share their stories about their experience during this Coronavirus pandemic. Please see the following:

New social distancing measures, long-term rules and streamlining the unemployment benefits process (4/9/20) Gov. Cooper Executive Order 131

Governor Cooper Signs Executive Order to Prohibit Utility Disconnections

On March 31st, Governer Cooper signed Executive Order #124: an additional step to help families by prohibiting utilities from disconnecting people who are unable to pay during this pandemic. The order applies to electric, gas, water and wastewater services for the next 60 days. The order directs utility companies to give residential customers at least six months to pay outstanding bills and prohibits them from collecting fees, penalties or interest for late payment. Read more here.

If you have an Intellectual/ Cognitive Disability and Need to Go to the Hospital:
Your caregiver may come with you in the ambulance or in the hospital.

Wondering if/how the stimulus checks will affect Medicaid eligibility?

Notwithstanding any other provision of law, any refund (or advance payment with respect to a refundable credit) made to any individual under this title shall not be taken into account as income, and shall not be taken into account as resources for a period of 12 months from receipt, for purposes of determining the eligibility of such individual (or any other individual) for benefits or assistance (or the amount or extent of benefits or assistance) under any Federal program or under any State or local program financed in whole or in part with Federal funds.

Following is news from the State Council on Developmental Disabilities

During difficult times, we rely on our community. The State Council on Developmental Disabilities has been making resources related to COVID-19 so that you can more easily stay close to your community while staying safe and healthy. We have listed some of those resources here, and remember to visit the SCDD website for the additional resources.

1) 10 Tips to Support Someone During Times of Change / 10 Consejos para Apoyar a Alguien en Tiempos de CambioOne of the tips and ideas to support someone during times of frequent change is creating a picture album. We created one for you to check out. Click the photo below to see the bigger version.

SCDD's picture album with eight photos. 1. puppy. 2. woman speaking with a mic. 3. Man putting a sticker on a poster board. 4. people raising hands. 5. man speaking in a group setting. 6. woman writing on a poster board. 7. man and woman at a meeting table

2) SCDD Phone Tree Tips / Consejos de SCDD para una red de teléfonos: Not everyone has the internet or uses computers. Use these handy tips to call a friend and see if they are ok or need help. 

3) Ideas for Activities While Sheltering in Place / Ideas para Actividades Mientras Se Refugia en el LugarWe have some creative ideas for activities to try while you are staying inside. When you do any of these activities, we would love to hear about them. Feel free to share your stories or photos with us by emailing us or tagging us on social media.

Plain Language Tips for Working with Support Staff during COVID-19

SARTAC (Self Advocacy Resource and Technical Assistance Center) released a new plain language booklet written by and for self-advocates. The Coronavirus or COVID-19 is changing our lives in many ways for a while. Self-advocates wrote these tips to help people with developmental disabilities deal with changes in how they are getting services. The suggestions are about working with support staff during COVID-19.

New Patient Fact Sheet Available – What to do if you feel sick

For people who think they might have COVID-19 and have mild symptoms, the Centers for Disease Control and Prevention now recommends they stay home and call their doctor if you need medical advice. Most people who get COVID-19 will have mild illness and recover at home. NCDHHS has developed a fact sheet to help North Carolinians know what to do if they are sick: Fact Sheet

Social Security & Coronavirus

Read The Collaborative’s Information on Tax Filing Requirements for the Stimulus

Helpful information for anyone receiving SSA benefits. Be aware of scams during the pandemic. The SSA will not suspend any payments due to COVID-19. Any call or email stating otherwise is untrustworthy. Stay updated with information directly from the US Social Security Administration.

COVID19 Prevention ENG


COVID-19 Prevention Recommendations
Fact Sheet:

English VersionSpanish Version


COVID19 Prevention ENG

Plain Language
Information Sheet
on COVID-19:

English VersionSpanish Version


COVID19 Prevention ENG 

Text Only Plain Language
Information Sheet
on COVID-19:

English VersionSpanish Version

COVID19 Prevention ENG     

Supporting Individuals
with Autism in
Uncertain Times
Fact Sheet:


Opportunities for Self-Advocates to Participate in COVID 19 Response Efforts

NC DHHS COVID-19 Website

Administration For Community Living COVID-19 Website


NC Moves to Safer At Home Phase 2

After two weeks in Phase 1, the state’s overall key indicators remain stable but the continued increases in daily case counts signal a need to take a more modest step forward in Phase 2 than originally envisioned.

Medicaid and RA Protections during COVID-19

Flexibilities during COVID-19 – TBI Innovations Waiver Appendix K Update(s)

 Safeguard Against Disability Discrimination

Important Health Care Guidance for People with Disabilities during COVID-19

Click here to stay up-to-date on COVID-19 in NCor text COVIDNC to 898211.  

Call 2-1-1 (or 888-892-1162) for general questions or for help finding human services resources in your community.


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North Carolina Council on Developmental Disabilities
820 South Boylan Avenue
Raleigh, NC  27603
919-527-6500 (voice/tdd)
800-357-6916 (voice/tdd)
800-357-6916 (TTY)
919-850-2915 fax