General Sources of Disability Information

Please click organization names to navigate to corresponding Web sites. The list of sources is also available in pdf and Word formats (pdf / doc).

Action for Children “Action for Children is dedicated to educating and engaging all people across the state to ensure that our children are healthy, safe, well-educated and have every opportunity for success. Their goals are to ensure that all children will be healthy, will be safe in their homes, schools and community, will have economic security and will be provided the opportunity and resources to succeed in their education.”
Raleigh, NC.

ADA Information Line “A site dedicated to providing current information on the Americans with Disabilities Act.”
Washington, DC

Alliance of Disability Advocates “Alliance of Disability Advocates is committed to assisting people with disabilities to live independently and become productive, full participants in society through independent and systems advocacy, peer mentoring and support, information and referral, independent living skills training, and community inclusion.”
Raleigh, NC

AMBUCS “National AMBUCS™, Inc. is a non-profit service organization consisting of a diverse group of men and women who are dedicated to creating mobility and independence for people with disabilities.”
High Point, NC

Arts Access Inc. “Arts Access is an organization whose fundamental goal is to encourage and enable people with disabilities to have full access to arts programs and facilities and participate fully in the cultural and artistic life of Raleigh and the Triangle area.”
Raleigh, NC

Autism Society of North Carolina, Inc. “The Autism Society of North Carolina is committed to providing support and promoting opportunities which enhance the lives of individuals within the autism spectrum and their families.”
Raleigh, NC

BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc. “The mission of BEGINNINGS is to inform and empower parents as they make decisions about their child. In addition, BEGINNINGS is committed to providing technical assistance to professionals who work with these families to help the children achieve full participation in society.”
Raleigh, NC

Brain Injury Association of NC, Inc. “The mission of BIANC is to offer help, hope and a voice for people with brain injuries and their families.”
Raleigh, NC

Center for Universal Design “Our mission is to improve environments and products through design innovation, research, education and design assistance.”
Raleigh, NC

Cystic Fibrosis Foundation - North Carolinas Chapter “The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.”
Raleigh, NC

Developmental Disabilities Training Institute “The mission of the Developmental Disabilities Training Institute is to foster improvements in services and supports to persons with developmental disabilities (and those with a dual diagnosis of a developmental disability and a mental health issue) through developing the knowledge, attitudes, and skills of staff and others involved in their lives.”
Chapel Hill, NC

Disability Advocates and Resource Center “The Disability Advocates and Resource Center empowers people with disabilities to achieve their desired level of independence. They promote the full inclusion of individuals with disabilities into mainstream society through our four core services including information and referral, peer mentoring and support, independent living skills training, and community Awareness.”
Greenville, NC

Disability Partners “Partnering with individuals and the community to enhance, advocate for and support personal choices, independent living and community inclusion.”
Asheville, NC

disAbility Resource Center “The disAbility Resource Center is a community based residential program that provides free services to individuals with disabilities, dedicated to assisting all persons regardless of disability in making choices about their own lives and in experiencing success as active participants in society.”
Wilmington, NC

Disability Rights North Carolina “Disability Rights helps people across North Carolina gain access to services and opportunity through its legally based advocacy.”
Raleigh, NC

Disability Rights & Resources “Disability Rights and Resources is an organization dedicated to the philosophy that all people should have access to the same privileges, options and control over their own choices in their own lives. They provide services and workshops focusing on fair housing, transportation and other services ensuring the independence of those with disabilities.”
Charlotte, NC

Division for Exceptional Children “The mission of the Exceptional Children Division is to assure that students with disabilities develop mentally, physically, emotionally, and vocationally through the provision of an appropriate individualized education in the least restrictive environment.”
Raleigh, NC

Division of Aging “DOA aims to promote independence and enhance the dignity of North Carolina's older adults, persons with disabilities, and their families through a community-based system of opportunities, services, benefits, and protections; to ready younger generations to enjoy their later years; and to help society and government plan and prepare for the changing demographics.”
Raleigh, NC

Division of Child Development “The social and economic future of NC depends upon the success of our children. To that end, we implement quality standards, increase access for families, and collaborate to promote enhanced service delivery of care and education across the state.”
Raleigh, NC

Division of Medical Assistance “The mission of the Division of Medical Assistance (DMA) is to provide access to high quality, medically necessary health care for eligible North Carolina residents through cost-effective purchasing of health care services and products.”
Raleigh, NC

Division of Services for the Blind “Since 1935, the mission of the North Carolina Division of Services for the Blind has been to enable people who are blind or visually impaired to reach their goals of independence and employment.”
Raleigh, NC

Division of Vocational Rehabilitation Services “To promote employment and independence for people with disabilities through customer partnership and community leadership.”
Raleigh, NC

DMH/DD/SAS Division of Mental Health, Developmental Disabilities, and Substance Abuse Services “North Carolina will provide people with, or at risk of, mental illness, developmental disabilities and substance abuse problems and their families the necessary, prevention, intervention, treatment, services and supports they need to live successfully in communities of their choice.”
Raleigh, NC

Easter Seals UCP North Carolina “Easter Seals UCP serves a broad range of people with disabilities, such as people with cerebral palsy, autism, spina bifida, intellectual disabilities, muscular dystrophy, stroke, spinal cord injuries, head injuries, hearing and visual impairments and mental health diagnoses.”
Raleigh, NC

Endless Options for All Disabilities “This is an open discussion forum and a place to raise questions as well as to learn about online resources, articles, meetings, events etc. This blog is open to everyone, and active participation is welcome!”

Epilepsy Foundation of North Carolina, Inc. “The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research.”
Winston-Salem, NC

Epilepsy Information Service “The Epilepsy Information Service is a hotline managed by internationally known epilepsy expert, Patricia Gibson. Ms. Gibson is actively involved in all major epilepsy associations.”
Winston-Salem, NC

Exceptional Children's Assistance Center (ECAC) “ECAC is North Carolina’s Parent Center and is committed to improving the lives and education of ALL children. ECAC offers a variety of projects and services designed to meet the needs of NC parents, families, students, educators, and other professionals.”
Davidson, NC

Family Support Network of North Carolina “Family Support Network of North Carolina promotes and provides support for families with children who have special needs.”
Chapel Hill, NC

First in Families of North Carolina “First In Families of North Carolina assists people with disabilities and their families to achieve their goals and realize their dreams through providing seed grants to families and individuals.”
Durham, NC

Frank Porter Graham Child Development Center “The FPG Child Development Institute, a multidisciplinary institute at UNC-Chapel Hill, recognizes that every child deserves a safe, healthy, and stimulating childhood. Their work is dedicated to making this a reality for all children. FPG scientists study important issues facing young children and their families and use this information to enhance policy and improve practice. Our goal is to ensure that all children have a strong foundation for academic success and full participation as caring and responsible citizens of a multicultural world.”
Chapel Hill, NC

Joy A. Shabazz Center for Independent Living “Joy A. Shabazz Center provides advocacy, peer counseling and peer support, independent living skills training, information and referrals, with other related services for persons with disabilities.”
Greensboro, NC

Learning Together, Inc. “Learning Together provides innovative and culturally diverse learning experiences and supports for children with disabilities, children who are typically developing, and their families.”
Raleigh, NC

March of Dimes Birth Defects Foundation “The March of Dimes Birth Defects Foundation is committed to improving the health of babies by preventing birth defects, premature birth and infant mortality. They carry out this mission through research, community services, education and advocacy to save babies' lives.”
Raleigh, NC

Mental Health Association in NC, Inc. “The Mental Health Association in North Carolina is the state's oldest and largest private, non-profit mental health advocacy organization. Our mission is to promote mental health, prevent mental illness, and eliminate discrimination against people with mental illness. They accomplish these goals through advocacy, education, service and research.”
Raleigh, NC

Muscular Dystrophy Association “The Muscular Dystrophy Association is a non-profit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research in addition to providing comprehensive health care and support services, advocacy and education.”
Raleigh and Greensboro, NC

NAMI North Carolina “NAMI NC (National Alliance on Mental Illness) provides support, education and advocacy for people living with mental illnesses and their families and friends. They focus specifically upon those mental illnesses that are brain disorders, which are serious illnesses that can affect a person’s ability to think, feel and relate to other people and the environment.”
Raleigh, NC

National Federation of the Blind of North Carolina “The National Federation of the Blind of North Carolina improves blind people’s lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence. It is the leading force in the blindness field today and the voice of the nation's blind.”
Charlotte, NC

National Multiple Sclerosis Society (Eastern NC / Central North Carolina) “The National MS Society, Eastern Chapter addresses the challenges of living with MS through their 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.”
Eastern North Carolina Chapter, Raleigh, NC
Central North Carolina Chapter, Greensboro, NC

NC TASH “NC TASH is the advocacy organization in North Carolina for children and adults with severe disabilities, taking a strong lead in the effort to reform attitudes, supports and conditions for people with disabilities. It has been the leading proponent of inclusive education at all age levels, as well as integrative education, housing, employment and social justice for adults with these disabilities.”
Durham, NC

North Carolina Adult Day Care Association “The North Carolina Adult Day Services Association (NCADSA), a non-profit trade association, serves as the central voice for adult day service providers and the people who use adult day services in North Carolina. NCADSA member centers provide innovative programs that support individuals with physical or mental disabilities in a safe environment during the day.”
Fuquay Varina, NC

North Carolina Area Health Education Center Program “The mission of the North Carolina AHEC Program is to meet the state’s health and health workforce needs by providing educational programs in partnership with academic institutions, health care agencies, and other organizations committed to improving the health of the people of North Carolina.”
Chapel Hill, NC

North Carolina Assistive Technology Project “The North Carolina Assistive Technology Program (NCATP) is a state and federally funded program that provides assistive technology services statewide to people of all ages and abilities.”
Raleigh, NC

The North Carolina Association for Persons in Supported Employment “The North Carolina Association for Persons in Supported Employment (APSE) is the only national organization with an exclusive focus on integrated employment and career advancement opportunities for individuals with disabilities.”
Charlotte, NC

North Carolina Center for Public Policy Research “The North Carolina Center for Public Policy Research identifies public policy issues facing North Carolina and enriches the dialogue among citizens, the media, and policymakers. They are dedicated to the goals of a better-informed public and more effective, accountable, and responsive government.”
Raleigh, NC

North Carolina Council of Community Programs “The North Carolina Council of Community MH/DD/SA Programs was incorporated in 1982 as a nonprofit association dedicated to helping its member area programs improve their service quality and management effectiveness. The Council provides its member programs with a strong, cohesive, statewide voice through policy analysis, technical assistance, publications, and educational programs.”
Raleigh, NC

North Carolina Developmental Disabilities Consortium For more information contact the DD Council
(919) 850-2901 (800) 357-6916.

North Carolina Department of Public Instruction “The North Carolina Department of Public Instruction provides information and education on inclusion based programs within the state school system.”
Raleigh, NC

North Carolina Council on Developmental Disabilities “Our mission is to ensure that people with developmental disabilities and their families participate in the design of and have access to culturally competent services and supports, as well as other assistance and opportunities, which promote inclusive communities.”
Raleigh, NC

North Carolina Department of Health and Human Services & Divisions Related to Disability, Office of the Secretary “The North Carolina Department of Health and Human Services (DHHS) is the largest agency in state government, responsible for ensuring the health, safety and well being of all North Carolinians, providing the human service needs for fragile populations like the mentally ill, deaf, blind and developmentally disabled, and helping poor North Carolinians achieve economic independence.”
Raleigh, NC

North Carolina Office on Disability and Health “The NC Office on Disability and Health (NCODH) works to promote the health and wellness of persons with disabilities in North Carolina through an integrated program of policy, practice and evaluation.”
Chapel Hill, NC

Office of Minority Health and Health Disparities “To promote and advocate for the elimination of health disparities among all racial and ethnic minorities and other underserved populations in North Carolina.”
Raleigh, NC

Partners in Policymaking “The North Carolina Partners in Policymaking program helps open the door for people with intellectual and developmental disabilities and family members to participate in the public discussion of principles and policies that affect their lives and their role in the community.”
Raleigh, NC

Pathways for the Future, Inc. “Pathway for the Future, Inc is dedicated to increasing independence, changing attitudes and promoting equal access and building peer support network in Western North Carolina through the use of community education, independent living services, and advocacy.”
Sylva, NC

Regional Disability & Business Technical Assistance Centers “The ADA National Network provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of business, government and individuals at local, regional and national levels.”
Washington, DC

Special Olympics of North Carolina “The Special Olympics of North Carolina provides year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness.”
Morrisville, NC

Spina Bifida Association of North Carolina “The Spina Bifida Association of North Carolina has a vision to help promote awareness of Spina Bifida and is committed to enhancing the quality of life, providing information to families who are raising a child with Spina Bifida, and decreasing the amount of babies born with Spina Bifida.”
Indian Trail, NC

The Adaptables Center for Independent Living “The Adaptables encourages independent living for persons with disabilities, committed to help individuals with disabilities become more fully integrated into society.”
Winston-Salem, NC

The Arc of North Carolina Policy Blog “A blog dedicated to disability policy in North Carolina.”

The Carolina Institute for Developmental Disabilities “Much of the work focusing on people with developmental disabilities is aimed at societal change-removing barriers, promoting inclusion, and defining least restrictive environments. The Clinical Center for the Study of Development and Learning at the University of North Carolina at Chapel Hill adds to this current model an innovative, research-based perspective: a focus on how people with developmental disabilities learn, and how they can learn better.”
Chapel Hill, NC

TEACCH “TEACCH (Treatment and Education of Autistic and Communication related handicapped CHildren) is an evidence-based service, training, and research program for individuals of all ages and skill levels with autism spectrum disorders.”
Chapel Hill, NC